Testimony – Episode 4: The Drip and the Blanket

Testimony Episode 4 — The Drip and the Blanket
Episode 4 — The Drip and the Blanket
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There is a particular kind of silence inside a daily care room.

Not the silence of peace. Not the silence of rest. It is the silence of a body being worked on — slowly, carefully, drop by drop — while the mind lies very still and watches.

I had been told what to expect. The nurses at Hematologiskt Centrum had explained the process: the IV line, the rate of the drip, the hours it would take. They had told me about possible reactions. Their voices were calm and precise, the way voices become when they have said the same words many times and learned that calm is itself a kind of medicine.

I listened. I nodded. I lay down on the patient bed.

The room was not bright. The overhead lights were kept low, but sunlight reached in from outside — not direct, filtered — and cast soft shadows across the ceiling and walls. It was a gentle light. The kind that does not demand anything from you.

Around each bed, long curtains hung from ceiling rails, drawn closed to make a small private world of each patient. I could not see who was in the next bed. But I could hear him — a voice, low and steady, talking to a nurse on the other side of the partition. We were separated and together at the same time. Each of us inside our own curtained quiet, each carrying something the other could not fully see.

And then the drip began.


25 August 2017.

Besökskort — Hematologen R51-53, Karolinska University Hospital

Besökskort — Hematologen R51-53, Karolinska University Hospital, Huddinge

The first MabThera infusion.

One drop. Then another. Then another.

I had been coming to Karolinska University Hospital in Huddinge long enough by then that the corridors felt familiar. The smell of the building. The particular light. The sound of trolleys in the hallway. These were not strangers around me — they were people I had learned to read, faces I recognised, a team that had walked with me from the first uncertain appointments through the diagnosis and into this room. That familiarity mattered. It was its own kind of ground to stand on.

But familiarity does not make a needle smaller. It does not slow the clock.

The hours inside that bed were still long.


When the needle found the right vein and the drip began, I felt the first drop enter my body. Then another. Then another. Quiet, precise, unhurried. The nurse made sure everything was running correctly, then left me alone behind the curtain.

A minute passed. Then two. Then five.

I lay still, watching the soft shadows on the ceiling, listening to the low voice of the patient on the other side of the partition. The room was calm. The drip was calm. My breathing was calm.

And then, somewhere into the infusion, my body decided it had something to say.

It started as a feeling I tried to dismiss. No. Nothing. It is nothing. But the cold came anyway — not ordinary cold, not the kind you can reason with — a chill that moved from deep inside and worked its way outward. Then the trembling began. Not a shiver. A shaking. The kind that does not ask permission, that does not wait for you to understand what is happening before it takes over your hands, your arms, your whole body.

I had no idea what it was.

I tried to hold still. I tried to tell myself it was passing, that it was nothing, that bodies do strange things and this would stop. But the trembling only grew — uncontrollable, insistent, my hands shaking, the cold moving deeper into my bones with every minute.

And here is the thing I have not yet said: I did not call the nurse immediately. This was my first treatment. I did not know what a normal reaction looked like, and I did not know what an emergency looked like. I had no reference point. So I waited — telling myself it would pass, that perhaps this was simply what the medicine did, that I should not make a fuss over something I did not yet understand. I held on, and I shook, and I said nothing.

Until I could not hold on any longer.

I needed the nurse. I looked around from the bed, trying to think clearly through the shaking — and then I saw it. A button on the wall beside me. Push to call the nurse.

I pushed it. Not calmly. With a hand I could barely steady, with something close to panic moving through me.

She came quickly. Her name was Lisa.

She recognised what she saw — had seen it before, many times before — and she moved without panic, which was exactly what I needed someone near me to do. She stopped the infusion. She gave me doses of Cortisone. When my temperature rose a little, she brought it down with Paracetamol. She did what trained hands do when a body responds in a language they already know how to answer.

And then she stopped beside the bed and looked at me.

“Do you want an extra blanket?” she asked.

“Yes, please.”

I do not know how much effort those two words took. Not much, perhaps. Or perhaps more than they should have. When your body is shaking and the cold has settled deep into your bones and you are trying to hold on to some ordinary version of yourself, even a small request can feel like an admission.

I pulled the blanket around my shoulders.

From that point, Lisa came to check on me every thirty minutes or less — blood pressure, temperature, a few quiet questions — and then left me to sleep again. That went on for about six hours in total. I had no lunch that day. Only a small cup of coffee from the automat in the corridor.

That small exchange — the blanket, the thirty-minute visits, the coffee.

In a room full of medicine and precision and clinical protocol, someone had decided that warmth also belonged there. That the body being treated was still a body that could be cold, still a person who might need something soft against their skin.

I think about that blanket still.


The infusion took several hours.

By the time the drip was done, the light in the room had changed. The shadows had moved. The afternoon had become something else without my noticing.

At some point during those hours I had fallen asleep. The medication had taken effect — quietly, without announcement — and somewhere between the drip and the blanket and the soft shadows on the ceiling, consciousness had simply let go. I do not remember dreaming. I am not even entirely sure the nurse who checked on me was not part of a dream. That boundary — between sleep and waking, between what happened and what I only half-perceived — was not clear then, and it is not clear now.

I had not moved. But something had.

The medicine was inside me now — working, they had explained, to find the wrong cells, the ones that did not belong, the ones that had been quietly growing where they should not have been. The body waging a slow internal war with borrowed soldiers.

And the blood — always the blood — was where that war was being fought. Where the wrong cells had first appeared, where the medicine would seek them out, and where the evidence of progress, or its absence, would eventually show. It was only right that every visit began there.

Before the drip there had been a blood test — blodprov — as there would be before every session. They needed to read the body first, to know where it was, before they could continue treating it. Data before medicine. Numbers before the needle. Each visit began with the same quiet question put to the blood: how are you holding?

Finally, I stood up carefully. Lisa checked on me one last time. I walked out into the corridor.

It was close to four in the afternoon. I was hungry — properly hungry, the kind that reminds you that the body, whatever it has just been through, is still a body with ordinary needs. I found a restaurant inside the hospital and sat down with a plate of salad. I ate quickly, with the focused appetite of someone who has not eaten since morning.

Then I walked. About half a kilometre, on foot, to the ICA Maxi nearby. I had fruits to buy — part of the self-treatment discipline I had already begun building. The errand felt ordinary. It also felt like a small act of defiance: the body that had just spent six hours being worked on, walking now under its own power, buying its own food, continuing its own care.

Outside, the hospital continued its ordinary business. Footsteps. Voices. The low hum of a building full of people doing difficult work. I carried the stillness of the infusion room with me for a while, like something I was not ready to put down.


The Rhythm of the Weeks

That yellow card went everywhere with me.

BESÖKSKORT: Hematologen R51-53.

Four lines. Four dates. Four weeks.

25 augusti — 1 september — 8 september — 15 september.

Every week the same corridor. Every week the same room, the same curtain, the same bed. The blood test first, then the wait, then the drip. The body learning to expect it — not comfortable exactly, but no longer surprised. There is a particular kind of endurance that comes not from strength but from repetition. You simply return. You lie down. You let the drip begin again.

–”– the card reads, for each visit after the first. Ditto. Same as before. Same reason.

behandling MabThera + Prove.

Treatment and test. Week after week. Until the four weeks were done.

But driven by curiosity — and perhaps by a need to feel less like a passenger in my own body — I had decided to make my own journey alongside the one the doctors were managing. To become, in my own small way, both patient and observer.


The Parallel Treatment

And so, quietly, I built my own little clinic — at home, outside the hospital walls.

Before the first infusion — before 25 August — I had already begun something of my own. Not instead of the medicine. Alongside it. A parallel discipline, quiet and daily, that no doctor had prescribed but that I had decided was necessary.

I had purchased apparatus. A blood pressure monitor. A body scale. A food scale. A thermometer. Small devices, each with a specific task, each connected by Bluetooth to a program on my laptop: Beurer HealthManager. Every measurement logged automatically. Date, time, value. The data accumulating day by day into something I could read, something I could follow — a map of my own body drawn in numbers.

Beurer HealthManager — augusti 2017

Beurer HealthManager — blood pressure readings, augusti 2017

And alongside Beurer, a second program: Clarus PHR — Personal Health Record. Where Beurer captured the raw data automatically, Clarus received what I entered manually — the summary, the interpretation, the bigger picture. Blood pressure. BMI. Pulse rate. Temperature. A personal medical file, maintained in parallel to whatever Karolinska was recording in their own systems.

Every morning, almost the first thing after waking, before the day had fully begun: weight, blood pressure, pulse, temperature. The numbers written into the machine. The trend watched carefully. Was it stable? Was it rising? Was something changing that needed attention?

I also watched what I ate. Not casually — with a food scale, with intention, with the understanding that the body fighting lymphoma needed more from me than ordinary habits. Supplements. Adjusted portions. Choices made not by appetite but by what I believed the body needed to endure what was coming each week.

I read everything I could find. Booklets from the hospital. Digital resources in Swedish. And an app I found in the Apple Store and Windows Store — published by an American lymphoma research institute, simply called Lymphoma — which I downloaded and worked through carefully, and later recommended to my brother to download too, so he could understand what I was going through from the other side of the world.

And sometime in the week after the last infusion of this first phase, I did one more thing. I joined Blodcancerföreningen — the Swedish Blood Cancer Foundation. Two hundred kronor. A small act, but a deliberate one. I was not just a patient moving through a system. I was part of something — a community of people who understood this particular weight from the inside.

This was my contribution to the treatment. What I could control, when so much could not be controlled.

And here is perhaps the most telling detail of all. I was on sick leave during those weeks — the diagnosis made that inevitable. But in my own mind, I let myself pretend it was vacation. A private reframing, invisible to anyone else, but important to me. Because this was not time lost to illness. This was a journey — inward, private, necessary. A travel deep inside myself. And journeys, I have always felt, deserve to be taken on your own terms.

Clarus PHR — Personal Health Record

Clarus PHR — Personal Health Record dashboard


The Flowers

Flowers from colleagues at Byggplast — Krya på dig Agus!

From Manuel and all colleagues at Byggplast & Båtpryllar AB — sent to the apartment

At home, there were flowers.

I do not know exactly when Manuel had arranged it — he had not made a point of telling me, had not waited for my reaction. That was his way. He had simply done it: spoken to the others at Byggplast & Båtpryllar AB, gathered something on behalf of all of them, and sent it to the apartment.

A bouquet. With a card.

Krya på dig Agus!
Vi tänker på dig…
Varma hälsningar dina kollegor på Byggplast.

I put the flowers beside the window, where the light reached them. I kept them there until they dried. Long after they had lost their colour, I kept them. Because they were proof of something — that while I was lying in that bed, in that curtained quiet, with that drip running into my arm, people who knew me were thinking about me. Were sending warmth across the distance between their ordinary day and mine.

That matters. It is hard to explain exactly why, but it matters enormously.


That evening, I lay down.

Outside the window, the flowers from Manuel and the others were catching the last of the light — still fresh, still standing, still carrying the colour of the gesture that had sent them.

The blanket from the infusion bed was not with me. But I remembered the weight of it. The way it had arrived after two quiet words.

Yes, please.

Some care comes like that — after a small admission, a moment of letting go. It simply appears, because someone asked, and you answered, and warmth followed.

I held on to that. On the hard days, and there were many, I held on to that.


Episode 5: The Quiet Work

© AbeArtsSweden — Testimony is a personal blog series written in dialogue with memory, documents, and time.


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